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Frances Forgione

First Dose of Moderna in 02/2021

Second Dose of Moderna in 03/2021

Denver, Colorado

60 yrs old

Q: What was your life like before you got the vaccine?

Happy & healthy, very active. Rarely got sick or even had colds.

Q: Would you like to share your reasons for getting vaccinated?

To protect others and myself, or so I thought. At the time I thought it was best thing to do. Very little info on risks was given and maybe not known enough at that point. But the CDC needs to start listening/researching and not just pushing vaccines for all. I understand there is a balance for the good of all with stopping this disease and personal risks.

Q: What was your reaction, symptoms, & timeline?

Symptoms started in Feb & March 2021, with sensory issues on my back - clothes felt like sandpaper on my skin, sometimes felt like a sunburn when I didn't have one, or at times like acid under my skin.

By April 2021, started to experience strange tingling, burning, buzzing, vibrating in various parts of body - feet, legs, arms, spine, back of head.

By May, 2021, I could not even sleep on cotton sheets, as it was too painful.

Pain, burning, the feeling of sand in my clothes also spread to top of legs and parts of arms. That's when I started pain meds. I couldn't wear 95% of the clothes in my closet.

Q: What is your life like now, after getting the vaccine?

I have daily pain that I manage over the past year. I'm weary of trying to sort out what is wrong, what doctors to see, and what to do about it. I've spend 1-2 hours per day researching online. Only recently have I found others who are willing to look at all this stuff related to vaccines or find articles researching these matters. I try to keep a positive attitude and my faith in Jesus/God, who understands suffering and brings hope and new life.

Symptoms are worse on cold days and when I don't get good sleep.

I can only wear things made of nylon or some types of fleece. Even seams in the hem of clothes can hurt on my skin.

If I didn't have pain meds I couldn't function, as it would be unbearable.

I am a counselor and meet with people daily on Zoom. I recently had a client tell me that she couldn't see a counselor who didn't understand chronic pain. "Well, I guess I'm a good fit then", I said. I found myself praying for many of you on this website when I read your stories. I would love to talk to anyone whose symptoms resemble mine.

Q: Share your experience with any medical care and any diagnoses you have received:

Diagnosis: Small fiber neuropathy, peripheral neuropathy. Possibly zoster sine herpete (shingles without a rash). On the border of diagnosis for autoimmune disorder. Checking for Hashimoto's now. I take 300 mg of Gabapentin 3x/day for pain or else the pain would be unbearable. It felt like dying of covid would be blessing.

I have seen 4 neurologists, 1 rheumatologist, 2 GP's, 1 internal medicine dr., 1 dermatologist, 1 acupuncturist, 1 functional medicine doctor over the last 12 months. So many tests for this year - all came back normal until recently. I had thoracic MRI, EMG, blood tests of many kinds. 5 out of 11 doctors think this could be kicked off or connected to vaccines. Other doctors just say "we don't know" what caused it. The medication does not really treat the core issues to resolve things - just helps deal with the painful symptoms.

Q: Was your reaction reported, and what was the response?

It's taken me this long to put the pieces together to connect the timing back to vaccines and get doctors input. I plan to report it here soon.

Q: Is there anything that has helped, and have your symptoms improved?

Gabapentin definitely helps with 80% of the pain, but I still have pain daily. Other things that help - sleep, hot baths, hot showers, hot washcloth on my back rubbed very slowly. Warmer weather helps, because I can wear less clothes.

Exercise helps. My body craves more exercise, but I can't do as much as I used to. I have chronic pain but pray that there are more treatments that get to the root of the problem, whatever that is.

Q: Have you had Covid before?


Q: What do you wish others knew?

If any of you are finding treatments for peripheral neuropathy that might be caused by autoimmune issues, I'd be interested in hearing.

Vaccines should be a choice. Research should be done on:

  1. Timing of how close vaccines are given together, especially between shingles vaccine and covid vaccines. Even though covid people said 14 days in-between, the pharmacists told me that on the shingles side of it, a person should have 30 days in-between for other vaccines. I had a shingles vaccines 20 days before the covid vaccines.

  2. Research the symptoms people are reporting.

The CDC should have a full list of warnings and percentages of adverse reactions and include links to websites to read more information. There should also be financial assistance for those who have accumulated numerous medical bills. And quit censoring people. Thank you for this website.

If I could do it all over, I would go natural and get zero vaccines. I rarely got sick before all this. Needless to say I will not be getting any boosters. I still wear a mask when out and about. From reading stories here, I know some of you have had much worse, and I feel your pain. Let's be hope for one another, back to healing & happiness.

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