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Sutton Hohensee, 16 yrs old

First Dose of Pfizer on 06/2021

Second Dose of Pfizer in 07/2021

Booster Dose of Pfizer in 01/2022 Lot #330258D


16 yrs old

Q: What was your life like before you got the vaccine?

Honors high school student and varsity tennis player.

Q: Would you like to share your reason(s) for getting the vaccine?

I was thinking of others.

Q: What was your reaction, symptoms, & timeline?

January 2, 2022, I received the Pfizer booster. Didn’t think anything of it, because I received 2 shots in June, July ‘21 and had no side effects except a sore arm.

January 5, ‘22, I began to have a sore throat and thought I might be getting strep. I went and got strep, flu and COVID tested, and they were all negative, but my symptoms kept getting worse.

Monday, January 10, I went to school not feeling well. On the tennis courts was when my body shut down. I was served a ball and in a second, my body wouldn’t “go”. I had a sharp pain in my chest, and my breathing changed. I took my rescue inhaler, thinking it might be my exercise-induced asthma, and finished my match. By the end of the match, I was hyperventilating, had a sharp chest pain and my vision was blurry. My parents came and picked me up, got me home and from there my symptoms spiraled. I was checked for myocarditis and labs were drawn. My Dr. dismissed my symptoms and sent me home. I never went back to school, and new symptoms kept coming. The head pain became unbearable, orthostatic hypotension made my body want to pass out constantly. On January 23, I woke up and could not hold my head up. My mom took me me Texas Children’s. I was admitted under the care of a neurologist. MRI, lumbar puncture, migraine cocktail, labs, 8 rounds of DHE thinking I had a migraine, seeing the eye Dr. in the hospital, possibly getting a blood patch thinking I had a CFS leak. I just wanted to go home, and I did. I left Texas Children’s just the way I went in, nothing changed.

Since then, I have seen 23 different Drs., every MD you can imagine, had numerous blood draws, nerve blocks, myelogram, a second MRI with and without contrast, ketamine. I am refractory to all medications, the list is long, that I have tried for head pain and brain fog. I do have one I take to keep my blood pressure and heart rate under control. I have worked with a virologist and my local Dr., in hopes of some symptom improvement with specialized medication, but nothing has changed. Not one symptom, some are even worse. I am currently in the process of getting approved for IVIG. I have labs showing elevated auto antigens, high VEGF and SCD40L.

I never went back to school after January 10. I finished and graduated with online courses Dec. ‘22. College and work are both on hold. My symptom list is lengthy…chronic, all day 10/10 head pain and it gets worse with any stimulation, awful brain fog, I’m not even sure I can attend college class, malaise, I’m tired before I even get out of bed, orthostatic hypotension, bradycardia, tachycardia, tinnitus, blurriness/my vision cuts out often, dizziness, body temp dis-regulation, vasodilatation, GI issues, neuropathy in hands and feet, my breathing has never been the same since my episode on the tennis court.

I’m not sure what the future holds, my mom is my biggest advocate always researching what’s next, talking to Drs., taking me to appointments. I stay positive, knowing this is happening to me for a greater cause. I want to encourage and help other people through this…you are not alone. Stay strong!

Q: Tell us about any tests, diagnoses, and/or Medical Care received:

Refractory to all migraine medications, also medications to help brain fog, lumbar puncture, 2 different MRIs with and without contrast, myelogram, ketamine infusions for pain, occipital, ganglion and nose nerve blocks, vestibular physical therapy, labs ran by neurologist, oncologist, rheumatologist, endocrinologist, immunologist, cardiologist. All labs come back “normal”. Cytokine labs by virologist, Cunningham panel auto antigen test. I have also tried acupuncture and seen a chiropractor.

Neurologist has my diagnosis as chronic, daily persistent head pain (undiagnosed type) Dysautonomia/POTS, autonomic nervous system disorder, orthostatic hypotension.

Q: Where has your reaction been reported, and what was the response?

CICP, and VAERS no response.

Local Dr., neurologist, urologist, immunologist ongoing patient appointments.

Q: Have you had Covid before?

I had COVID for the first time Feb. ‘23. It was a mild case.

Q: What do you wish others knew?

Vaccine injury is real, be a voice, keep talking about it and searching for answers. Healthcare has not even scratched the surface of how to help us. Keep putting your symptoms in front of them, and eventually there will be research and treatment.

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