First Dose of Pfizer on 03/06/21
Second Dose of Pfizer on 04/12/21
East Northport, New York
39 yrs old
Q: What was your life like before you got the vaccine?
I was feeling the healthiest I have ever felt in my life. I had recently lost over 100 lbs and was feeling like I had a lot of energy, and was feeling great about myself.
Q: Would you like to share your reasons for getting vaccinated?
I was advised by multiple providers to get the vaccine due to having an autoimmune disease (Hashimotos), despite it being in remission. I was told the risk outweighed the benefits and "as soon as they open up criteria for autoimmune diseases" I should get my appointment as soon as possible. I felt very uneasy about getting this particular vaccine but had trust in my doctors, as I have had been a patient of each of them for almost 10 years.
Q: What was your reaction, symptoms, & timeline?
First dose-worst headache of my life for about 5 days, nothing would make it better. I was told by my doctors, it was completely normal and not to worry.
Second dose-no headache at all, just fever first day and flu like symptoms for about 12 hours. Pain in arm that lasted for about a week. 2 weeks after my second dose, I noticed when I would do any small amount of exertion (for ex; getting out of bed, walking to the bathroom) I would become confused, disoriented and would had episodes of syncope. It was then that my husband would start to have to have to carry me to the bathroom at night because I would fall and couldnt make it in time.
It was determined I had low diastolic blood pressure (which was attributed to, at rhat time, dehydration). As the days went on, throughout May and June, I started to experience bleeding during what would have been my period. I haven't had a period in over 4 years due to a partial hysterectomy so this was quite concerning. I was told everything was normal but my liver enzymes were concerning and it needed to be evaluated. From June to August I had 4 ER visits and 2 inpatient hospitalizations for different symptoms (severe UTI, gastroparesis, dehydration, arm numbness and stroke like symptoms with eye and facial droop, chronic constipation that would last almost an entire month despite intervention, which eventually led to hemorrhoidal surgery due to intolerable pain). I'm sure that I've blocked out other symptoms at this point.
From the time of the 2 week mark after the second dose, I saw all of the following specialists; gynecologist, primary care, gastroenterology (multiple), neurologist (multiple), endocrinologist, cardiologist(multiple), neurosurgeon, nephrologist, neuro-opthamalogist and colorectal surgeon).
In the end of August is when I started to notice having issues with my legs more consistently to the point where I did not feel it was safe to walk without a walker. This lasted for about a week and I quickly was told for my safety I needed to be utilizing a wheelchair be auze of how low my blood pressure would drop, which would result in me falling out of nowhere. This was the first time I was told they believed I had something called dysautonomia and that it was likely a result of the Covid-19 vaccines.
Q: What is your life like now, after getting the vaccine?
My life is unrecognizable. I am homebound, dependent on help from my husband and children who are 9 and 6 years old. I now have chronic pain throughout my body at random times, and I have numbness in my hands and legs throughout the day and nighttime is the worst because my legs are so restless.
My days consist of getting my children ready for school (which takes up every ounce of energy that I have) then staying in one position most of the day, feet elevated so that the blood doesnt pool and I don't become faint or fall. I have nursing care that comes into my home for IVIG and IV hydration and I feel completely isolated from life. I am unable to focus and am worried for my future because I have been told that there is no cure for my adverse reactions and that it's about symptom management.
Q: Share your experience with any medical care and any diagnoses you have received:
I've been told I have Dysautonomia, Sjorgens, Raynauds, and that a neck injury I had from a few years ago has been exacerbated due to arthritis. I am going to the Mayo Clinic in the next few weeks and am hopeful that they can provide some answers and advice because I feel like my life was taken from me.
Q: Was your reaction reported, and what was the response?
Q: Is there anything that has helped, and have your symptoms improved?
IV hydration helps sometimes, to bring up my diastolic blood pressure up a few notches but ultimately, it doesn't go up much. If I had it 7 days a week, I think it would make a tremendous difference. I also had a course of Ivermectin and felt that was the best I felt since having the vaccines. I was able to walk better and had less brain fog, I noticed a trend out difference but was unable to get more then one dose and quickly started to decline again. I also take detox baths and that helps temporarily.
Q: Have you had Covid before? What was your experience if so?
Yes, November 2021, I had a fever of 103 and was sent to the hospital for the monoclonal antibodies. It knocked me out for a day but then I had no covid symptoms.
Q: What do you wish others knew?
When I went to get the vaccines there was very little, if any, data on effectiveness, safety, and I took it because I always did as my doctors told me. And I believe wholeheartedly that my doctors believed in this vaccine too at the time. But now that we know that this vaccine is hurting and killing many people, I pray people think of my story along with the thousands of others who are coming forward. My children will never get THIS vaccine, they've been given every vaccine up to this point and I will not allow it.
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