First Dose of Moderna on 04/22/21 Lot #00C1C21A
Second Dose of Moderna on 05/20/21 #025C214
Phenix City, Alabama
36 yrs old
Q: What was your life like before you got the vaccine?
It was worrisome because of the pandemic, but my family and I adjusted to the changes. I was homeschooling my 3 kids with my husband. I had a few hobbies that I enjoyed.
Q: Would you like to share your reasons for getting vaccinated?
I have COPD, and I didn't want to die alone in a hospital. I wanted to do my part to help. I wanted to save my children any grief or suffering. It seemed like the right thing to do.
Q: What was your reaction, symptoms, & timeline?
I have problems with my short term memory. The following is written to the best of my capability at this time:
Both of the shots I received made my arm a bit sore. I recall being physically sick for a day or so after one shot, but I wasn't concerned because I assumed that having Covid would have been much worse. My mental health began to decline. I was able to have my medications adjusted, and I evened out for a while. My physical health was also declining. All of my previous conditions were getting worse regardless of treatment.
I ran out of medical coverage in the fall of 2021, but continued to take my medications as prescribed. I knew I needed to be seen by a doctor for my physical and mental health issues, but I had no options available to me at that time. In January of 2022, I went to my doctors with my concerns, and we did the best we could, I suppose.
Towards the end of January, I began stuttering, and I have never done that before in my life. I thought it was a side effect of one of my prescriptions but was told it was not. I became impulsive and lost my ability to even form a complete sentence at times. I was afraid I would do something irreversible, and so I somehow managed to drive to a local psychiatric hospital and check myself in. I stayed there for a few days before I was discharged. They ran some lab tests and all of my vitamins were deficient.
They didn't know what was causing the intermittent stuttering and other unusual symptoms, but they did decrease at that time with an adjustment to my medications. I also received a new diagnosis while I was there, but due to not having any actual tests for that condition, I'm not sure if it's a misdiagnosis that may be irrelevant.
I was referred by my primary care physician to a local Neurologist. After waiting weeks to be seen by him, most of the symptoms were no longer present. They were intermittent anyways, but I was doing pretty well at that time. I had 1 MRI and my vitamin levels were tested again. Neither came back irregular. I then asked his nurse, who I had called asking for my results, what I was to do now. He told me they were monitoring me. I asked what that meant, and he told me to call if my symptoms returned. I was disappointed, to say the least.
I noticed a metallic taste in my mouth for quite some time. I couldn't get rid of it with brushing or rinsing. Eventually, it just faded away, but I did note it as odd.
In June of 2022, symptoms returned and with them came even more disturbing symptoms. I called my Neurologist on a Thursday morning, I think. Then again that afternoon. I left messages but did not receive a call back. My husband and I discussed our options and decided I would check into the local psychiatric facility again. It was a Friday, and I needed to make a decision fast. I needed to make sure I would be safe. Doctor's offices were closed, and I didn't know what else to do.
I was shocked at how they treated me there though. I believe the nurses, techs and most of the people there thought I was faking my condition. They treated me as such. They lied to me and then to my husband.
The psychiatrist on call listened to me and discharged me less than 24 hours after I checked in. It was very clear that I wasn't going to benefit from staying there.
We then went to an Emergency Room out of state seeking help. I walked in with an intermittent stutter. In the waiting room, my head began to nod, shake, and move uncontrollably. I had to hold my husband's hand to walk as I was losing balance and control of my body.
In room 22 of the E.R., I told my husband to go get the kids from the babysitter, and I would call when it was time for me to go home. We thought I would be fine, because we explained everything to the nurse and she seemed to understand. After he left though, she ignored me. I had to hold anything I could to get to a restroom and back to my bed. There were some kind people passing by who would help me occasionally though. I fell and clung to the edge of the hospital bed. I called for help, but no one came. My legs were of no use anymore. I waited until my arms began to give out. I grabbed the blankets from the bed with one hand and pulled them down to the floor, hoping they would land under my head. Then I let go. I was flat on my back on the hospital floor. My legs started to move up and down, one at a time. My toes were pointed straight out and my legs were moving so rapidly. I could see them, but I couldn't stop the movement despite all my effort.
Parts of my body were becoming numb and lifeless, until I was partially paralyzed. I was aware of everything though.
When I regained control of my hands and arms, I took my phone and recorded what I thought was my last message.
Then a Neurologist I hadn't met came into the room. He told me he wouldn't be laying on that floor if he were me, or something like that. I replied, "I can't move". He said, "I know". Finally, a medical professional was acknowledging what I was going through. He told me that I have Functional Neurological Disorder. He showed me a website on his phone where I could get more information on FND. He said I should consider finding another state with more resources for my condition and moving there.
I am now out of medical coverage for the rest of this year. I have my family though, and that's all I really want. I try to keep my husband with me as much as possible, especially in medical facilities but with 3 kids, it's not always possible. I shouldn't need a witness just to be taken seriously.
Symptoms I should mention: *tremors *paralysis *high blood pressure *stuttering *blurred vision *right eye closing or blinking *uncontrollable movements and speech *sudden loss of strength and control of legs resulting in dropping to the floor *headaches & migraines *extremely itchy skin that becomes painful, all over my body, including scalp. *heightened sensitivity to lights and sounds *dissociation *fatigue *intense physical and emotional pain *possible arthritis... I haven't been tested.
Q: Share your experience with any medical care and any diagnoses you have received:
I've had 1 MRI & lab testing. I'd need to look at my medical records to remember the rest. Functional Neurological Disorder.
Q: Was your reaction reported, and what was the response?
Q: Is there anything that has helped, and have your symptoms improved?
Some helpful treatments I have tried... Music therapy. CBT therapy.
Q: Have you had Covid before? What was your experience if so?
Not that I'm aware of.
Q: What do you wish others knew?
I wish we were made aware earlier of the full extent of the consequences of this vaccine.
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