First Dose of Pfizer on 08/05/21 Lot #FC3180
Second Dose of Pfizer on 08/26/21 Lot #FC3182
Doylestown, Pennsylvania
41 yrs old
Q: What was your life like before you got the vaccine?
I’m a single mom to a miracle 5 year old daughter. I have endometriosis & Ehler’s Danlos Syndrome but although I had chronic pain it was managed well and I was a happy mama about to see my daughter start preschool in September.
Q: Would you like to share your reasons for getting vaccinated?
Because of my preexisting conditions I was against getting the vaccine because there was no long term studies and none of my doctors could tell me if it was safe for me to get it. But in July my sister caught Covid and she had a rough time and she started to beg me to get vaccinated. Then because I live with my elderly parents, my mom started to beg me as well to protect everyone. I caved against my own better judgment. I’m trying desperately not to hold what’s happening to me against them but it’s hard.
Q: What was your reaction, symptoms, & timeline?
I was fine after my 1st shot but after my 2nd I instantly reacted. I felt weird, tingling, hot and cold sweats, dizzy and nauseous. I was at Walgreens by myself and they basically said to hang out until I felt better but no one checked on me. After 30-45 minutes I felt well enough to drive home. As the day went on my right arm at the injection site was getting redder, swollen and hot. It was very alarming (I have a bunch of pictures of it). I was so worried I drew a line around the swelling before I went to bed so I could see if it was getting worse in the morning. As soon as I woke up on Friday I went to Urgent Care. They blew it off as what they called “Covid Arm” and I would be fine in a couple days and they sent me home. I was not fine. By Friday night the most excruciating pain I’ve ever experienced started in my entire body but especially my extremities. I continue to have the same level of 20 out of 10 pain 24/7 and nothing touches it or helps ease it even a little. At first I thought it was an autoimmune flare or my first full body EDS flare triggered by the vaccine but I was hoping it would fade away over time. As September & October passed I was experiencing weird symptoms of dizziness and vomiting but I attributed to how unbelievable the pain was. But around Halloween I got a sinus infection and my entire world turned upside down! I started getting “spells” or “whammies” as I call them that were lasting hours, then days, and then weeks full of different neurological symptoms. Dizziness, vertigo, falling and loosing balance, nausea and vomiting, it was difficult to think, to form sentences or words, brain fog, memory loss, sensitivity in my right ear and headaches. I was also so weak and standing up would send my heart racing and all I could do was lay down. I started loosing weight drastically and I’m now only 100lbs and no matter how much I eat I can’t gain any weight. I can’t remember most of November into Mid-December. I also had bronchitis that entire time and after 3 rounds of antibiotics it’s finally gone. I started desperately trying to get help late in November and although my doctor did diagnose me as having an adverse reaction she had no idea how to help and she wouldn’t file a VARES report because “she never had to do but those things are usually a lot of work” but I should do it myself (as if I could see straight to do anything at that point!) She recommended I go to a neurologist and a rheumatologist. At the time I was too sick to do that but by Mid-December my spells were starting to lessen but they pop up for no rhythm or reason I can figure out and they can happen at any time but I was able to start making my specialists appointments. The neurologist is concerned about my reflexes in my knees because I had none and I showed her the swollen lymph nodes up my right side of my neck. She ordered extensive blood work (my PCP had ordered some) and an MRI of my brain which I just had on Wednesday this week. My blood work came back and I have Mono which I now know is fairly common with these vaccines waking up dormant viruses. I have to go for nerve testing on my legs and then on my arms in February, I go to both the rheumatologist and endocrinologist this coming month as well. Also last week I saw a new PCP and he immediately knew I was having POTS induced by the vaccine. I’m waiting for my appointment for the diagnostic tests in the coming weeks.
Q: What is your life like now, after getting the vaccine?
My life has completely changed. I’m unable to care for my precious daughter who needs me! Thankfully I have my parents but I need to get better for her as soon as possible! I only leave the house to get driven to doctors appointments and I can no longer drive my daughter to school and pick her up and it breaks her heart. I’m completely disabled and spend all day laying on the couch. The pain is so bad I can’t even explain it and it never stops! I’m completely exhausted from the Mono and I’m weak after loosing so much weight and laying down for 5 months. I can barely do my part time job that I do from home. It’s hard to stand up for a shower so I go days without one. Financially I can barely survive. My daughters preschool tuition is $580 a month and she is all that matters but it’s getting harder and harder to get through each month. I don’t work enough to qualify for short term disability so every ounce of what little energy I am forced to put into work instead of giving it to my child just so we can get by. I’m falling apart and failing everyone. I didn’t deserve this and my daughter certainly didn’t deserve this either. I’m lucky to have doctors agree with my injury but finding doctors who will do anything has destroyed my respect for the medical profession. I tried to talk to my PCP about the long Covid and vaccine toxicity protocol I+MASK I think but I’m probably not remembering it correctly, and I brought her that and a well sourced study making similar treatment recommendations and she flipped through them until she found Ivermectin and angrily pointed at it and said “Oh No! We don’t give that to anyone! We’re not going to do this” and without reading anything else, folded the papers up and handed them back to me. After that she treated me like an idiot and chastised me for not getting my colonoscopy last year that the gastrointestinal basically told me I didn’t need. I deserve help. I deserve medical care and I won’t stop fighting until we all get it! So even though I’m as sick as I am I have fired up and ready to fight for us as soon as I can get around better!
Q: Share your experience with any medical care and any diagnoses you have received:
Unfortunately my experience with my primary doctor wouldn’t help me by filling my VARES report and told me I should do it. It took me too many times before I finally got it submitted successfully. In my desperate search for help I found a couple doctors equating long Covid and adverse reactions and they suggested similar treatments but when I brought the printed out studies to my Doctor to talk to her about she flipped through them until she got to the drugs that must not be named (Ivermectin and Hydroxychloroquine) and she angrily pointed repeatedly at the papers and said “Oh no! We don’t prescribe this to anyone! We’re not going to do this” and folded up the papers and handed them back to me. After that she scolded me for not getting a colonoscopy last year after the gastrointestinal doctor told me I didn’t need it. At one point I pulled up my sweatshirt to show her I was skin and bones and begged her to please help me. I left sobbing and so angry and I felt completely abandoned and lost. In the 20 years of chronic pain I had never had a doctor refuse to talk about different medications or treatment options. So I continued to search and I found you! And I found doctors who did believe you! It’s taken me too long to get here but I’m so grateful to have found you all! And I’m grateful to have found my own doctors who care now. I have been prescribed Meclizine 25mg 3 times a day for the dizziness and Zolfran 4mg 3 times a day for the nausea I’ve been diagnosed with Mono (reactivated by the vaccine from the dormant virus) I possibly have POTS but I haven’t had my diagnostic tests yet but they should be happening in the next few weeks I had an MRI of my brain this week but I don’t know the results but I have the CD of the MRI and I’m just waiting for the neurologist to call me with the results.
Q: Was your reaction reported, and what was the response?
I had to file my own VAERS report and I only received a confirmation email from them with my confirmation number. I reported it to Pfizer and they sent me paperwork but I was waiting for actual diagnosis’s before finishing them and returning them.
Q: Is there anything that has helped, and have your symptoms improved?
The 2 medications for dizziness and nausea have helped with those 2 symptoms.
The only thing that helps the pain is medical marijuana which is hugely expensive and Kratom which is also hugely expensive and I have to take a lot of both to get any benefits and relief but it’s better than none!
Q: Have you had Covid before? What was your experience if so?
I have never had Covid to my knowledge
Q: What do you wish others knew?
If you have Ehler’s Danlos Syndrome please don’t get these vaccines. My doctor said exactly this to me on Monday. Unfortunately I only found him after I got it and I’m paying for it. But I would like to share a few things. Thank you to those of you who were incredibly brave to come forward and share your stories! One of the first things I found after my horrible month and a half was Senator Johnson’s Rumble video and I realized I wasn’t alone! Thank you for being my hope on my darkest of hours! I know you have suffered already so much but I know you suffered much worse after that. Thank you for being warriors for truth, for accountability and for bringing hope for every injured person and for those who have tragically lost their children to these vaccines who are finding that video every day. I love you all even though I’ve never met you! Thank you to the amazing doctors who are out there fighting for their patients and have risked their careers in their commitment to do no harm! God bless each of you! I also am ready to fight for answers, for help and for compassionate care for all of us! And I’m ready to get together and hold everyone involved accountable in any way we can. None of us were able to give informed consent because none of us were informed of any side effects or risks. Stay strong and let’s help each other find the best doctors, the best scientists and answers! We matter! If you are reading this please hold on and know you are not alone! I see you and I love you and I’m sorry for what has happened to you!
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